Kirsten's Candy "Allergy"

Kirsten's Candy Jar

Must I lie to the school district??? To protect my child and to keep the peace at home!


Is it fair that only one class of youngsters must go the whole school year with no candy, treats or special parties, because one child has many allergies.  We know that some allergies can be so severe that they can result in death, and obviously all school teachers and administrators take that very seriously. So why is it so hard to understand... That giving a child who has a problem with food and weight, extra treats, is a bad thing? With the potential of life threatening consequences!


Aaarrrgghh.... My daughter Kirsten came home from school today (she rides the bus), and in her backpack was a nicely decorated jar that was about half full of skittles candy. No note or indication of how full it started out and it's Friday. On top of that, she had a goodie bag.  The candy jar was the prize for a successful guess, 280, of "jelly beans" (skittles). 


Is it so hard to understand that with Prader-Willi Syndrome (PWS), children lack control and understanding when it comes to limits on food. Why do these teachers say they understand, when clearly they do not! And why do so many continue to reward our kids with more and more candy... When obesity is a worldwide crisis?


With many children, the effects of PWS may not be as apparent, because even those with PWS have different metabolisms and environment that affect their growth, but my daughter is overweight.


To top it all off, the behavioral issues that are a part of PWS are worsened when routines are changed or when they can't have something that is theirs. What child is not going to be upset when someone takes their candy away?


It can be very frustrating! But, to try and punish all children (take away their right to treats at school) for my daughters syndrome isn't right either. My wife has seriously considered home schooling, but school has helped keep Kirsten's mind off food... Most of the time.


Prader-Willi Syndrome is hard to understand for most, because they don't live with it and... In their minds, how can a little candy now and then hurt? Aaarrrgghh... 


Most in the PWS community understand my frustration. For a mom's view on this subject, and a great comparison for better understanding, check out my friend Laurie's Blog post "It's official - I'm twice as stressed as everyone else..."

Because of this syndrome, my daughter does not burn calories as effectively as you or I, so she can not have near the normal amount of calories for someone of the same weight.  Managing her diet is very difficult, as you can imagine, and insuring that she gets the proper nutrition is also a struggle.  It is something she will deal with her whole life.  

I have always believed that if there was a chance to give her even a fraction more of potential for the future, it would be well worth it. That being said, Kirsten takes the ShakleeKids Incredivites (multi-vitamin/mineral) and Mighty Smart (100% DHA). If my family is going to use premium dietary supplements, green cleaning products, ect., I want to be able to find peer reviewed information that is available to the public, on the internet, to back up their quality.  Shaklee has this and provides these references for the whole world to see. It is in the "Clinical Research" section of their order guide. 

Terry Guinn, A Healthier You Too

Treat your family to the quality products they deserve. Shaklee products are always safe, always work, and are always green. If you would like more information about Shaklee products, please contact me, Terry Guinn, Shaklee Independent Distributor, through my website at  www.ahealthieryoutoo.com or if you would like to checkout the products for yourself, go to my Shaklee page at  www.ahealthieryoutoo.myshaklee.com 

Shakleebaby & Shakleekids

A Passing Grade for Better Health

Doctors don't have all the answers and if it takes a village to raise a child, does it also take a team of specialists to become a part of that village, to raise a child with Prader-Willi Syndrome?

Another three months have gone by and that means its time for another visit to the endocrinologist. That also means its time to work on my notes and questions, in preparation for the appointment.  Our doctors rely on blood tests, X-rays, studies, consultations with other doctors... And a parents impute.  If we fail to provide the right information, in a way that the doctors can comprehend and use this information, we may not receive a passing grade which is improved health for our children.

Twas the night before our appointment and all through the house,

everyone else was sleeping including my spouse.

The stockings were hung by the chimney with care,

because the children's excitement was to much to bear.

 I at my computer typing away,

preparing my notes for the following day.

For the endo would certainly be rushing about,

no time to stop and let questions come out.

Its Kirsten's health that I'm working on here,

so I'll do what it takes... I need a beer!

This is when I get excited, because I get to see just how successful we have been with Kirsten, now seven, who has Prader-Willi Syndrome.  It has been a real struggle to manage her diet and get the right balance of medicines.  Just like in the cartoons when someone plugs a leak in a dam, we feel like we have control and then another leak develops.  We plug that one and the initial leak burst again.  Our biggest struggle has been with weight and high cholesterol. We have managed to gain control of her weight this year and her cholesterol levels have come down some (as of 8/19).

We see many doctors in our quest to manage Kirsten's health, but it is the endocrinologist that I find most valuable.  Even though his bedside manner leaves a lot to be desired, he is very knowledgable and I find I can work with him as long as I come prepared. These quarterly visits, for me, have become somewhat of a quest for approval, and perhaps a challenge to earn that approval. I have always tried to do what is right, and what is best for Kirsten, but until the last couple visits, there was never any good news.  Of course one could say that if you are overcoming obstacles, even with new obstacles emerging, you are headed in the right direction.

Tomorrow promises to be enlightening and with all that I have learned this year alone, I am prepared to take Kirsten to her endocrinologist appointment... To see how I'm doing!

Another thing that I am doing to earn a passing grade in Kirsten's health, is providing her with Shakleekids Increditives multivitamin/multimineral dietary supplement. I want her to achieve her maximum potential, so I want products that I can trust to help her get there.

December is a great month to treat your family to the quality products they deserve.  Shaklee products are always safe, always work, and are always green.   Several promotions available, including the "Free Membership" offer below. If you would like more information about Shaklee products, please contact me, Terry Guinn, through my website at  www.ahealthieryoutoo.com or if you would like to checkout the products for yourself, go to my Shaklee page at www.ahealthieryoutoo.myshaklee.com 

SPECIAL OFFER:

December 1-31, 2010, "Free Membership" 

(a $19.95 value) with an order for $70 worth of products at member prices.