Thursday, December 16, 2010

A Passing Grade for Better Health

Doctors don't have all the answers and if it takes a village to raise a child, does it also take a team of specialists to become a part of that village, to raise a child with Prader-Willi Syndrome?

Another three months have gone by and that means its time for another visit to the endocrinologist. That also means its time to work on my notes and questions, in preparation for the appointment.  Our doctors rely on blood tests, X-rays, studies, consultations with other doctors... And a parents impute.  If we fail to provide the right information, in a way that the doctors can comprehend and use this information, we may not receive a passing grade which is improved health for our children.

Twas the night before our appointment and all through the house,
everyone else was sleeping including my spouse.
The stockings were hung by the chimney with care,
because the children's excitement was to much to bear.
 I at my computer typing away,
preparing my notes for the following day.
For the endo would certainly be rushing about,
no time to stop and let questions come out.
Its Kirsten's health that I'm working on here,
so I'll do what it takes... I need a beer!

This is when I get excited, because I get to see just how successful we have been with Kirsten, now seven, who has Prader-Willi Syndrome.  It has been a real struggle to manage her diet and get the right balance of medicines.  Just like in the cartoons when someone plugs a leak in a dam, we feel like we have control and then another leak develops.  We plug that one and the initial leak burst again.  Our biggest struggle has been with weight and high cholesterol. We have managed to gain control of her weight this year and her cholesterol levels have come down some (as of 8/19).

We see many doctors in our quest to manage Kirsten's health, but it is the endocrinologist that I find most valuable.  Even though his bedside manner leaves a lot to be desired, he is very knowledgable and I find I can work with him as long as I come prepared. These quarterly visits, for me, have become somewhat of a quest for approval, and perhaps a challenge to earn that approval. I have always tried to do what is right, and what is best for Kirsten, but until the last couple visits, there was never any good news.  Of course one could say that if you are overcoming obstacles, even with new obstacles emerging, you are headed in the right direction.

Tomorrow promises to be enlightening and with all that I have learned this year alone, I am prepared to take Kirsten to her endocrinologist appointment... To see how I'm doing!

Another thing that I am doing to earn a passing grade in Kirsten's health, is providing her with Shakleekids Increditives multivitamin/multimineral dietary supplement. I want her to achieve her maximum potential, so I want products that I can trust to help her get there.

December is a great month to treat your family to the quality products they deserve.  Shaklee products are always safealways work, and are always green.   Several promotions available, including the "Free Membership" offer below. If you would like more information about Shaklee products, please contact me, Terry Guinn, through my website at or if you would like to checkout the products for yourself, go to my Shaklee page at 

December 1-31, 2010, "Free Membership
(a $19.95 value) with an order for $70 worth of products at member prices.

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