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Wednesday, February 23, 2011

Prader-Willi Village

www.celebratedifferences.org
In the Prader-Willi village (or community), we share because we care... And "it takes a village to raise a child".  
How is it that the perfect parent (as if such a thing exists) could raise a child that will struggle physically and mentally?  You know those parents... They are the same ones writing books, creating videos, lecturing and telling you just how you should raise your child!
The truth is, there is no "one size fits all" to parenting. Yet many parents struggle to find answers, unsure of their own abilities and concerned about the future of their children.  This can hit especially hard in the special needs community where parents are searching for answers where fewer answers, or opinions, exist.
More and more, parents are turning to the internet to find answers. More and more, forums are popping up with many parents ready to share their tips and strategies for raising a special needs child. And, more and more, parents are questioning their own parenting techniques in the face of so many other parenting success stories, at least in what they perceive as success.  I see this often as I search and interact with other parents on-line who, as I do, have a child with Prader-Willi Syndrome. 
My twins (not so much)
It really does take a village to raise a child, but what some don't realize or forget because raising a special needs child can sometimes be overwhelming, is that just because our children have a syndrome or disability, the syndrome or disability is not the result of an identical corrupted set of DNA. Just as everyone has a unique set of fingerprints, everyone has a unique DNA.  Including every individual with Prader-Willi Syndrome. To dig a little deeper into DNA and better understand genetics, or even deeper into epigenetics (way over my head) is to come to the realization that even identical twins are probably not 100% identical at birth... And they grow less and less identical through life. 
Bottom line, and a line I love... Prader-Willi Syndrome is what they have and not who they are.  
In the Prader-Willi village, or community, we share because we care and it really does take a village to raise a child... Even if that community is only there for much needed moral support!  And every child with Prader-Willi Syndrome is unique, with different needs, abilities and potential. But, while the village can help, mom still knows best because she has a special bond and connection, a mothers intuition, that will help guide her child to reach their potential. 


Just as no one knows better than mom when it comes to her own child, no one knows better than you what is best for your family and how best to provide for your family. When it comes to my family, and especially my little girl who has Prader-Willi Syndrome, I trust Shaklee products to give me hope for the future.






Terry Guinn, A Healthier You Too

Treat your family to the quality products they deserve. Shaklee products are always safealways work, and are always green. If you would like more information about Shaklee products, please contact me, Terry Guinn, Shaklee Independent Distributor, through my website at  www.ahealthieryoutoo.com or if you would like to checkout the products for yourself, go to my Shaklee page at  www.ahealthieryoutoo.myshaklee.com 


Shakleebaby & Shakleekids

3 comments:

  1. I love that line too Terry! My son Nicholas has PWS, but who he is.....is so very much more! I am glad to be a part of this village.

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  2. It is amazing how Prader-Willi Syndrome has brought together so many people from around the world to share their lives in support of each other.

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  3. Terry,
    I am a single father with a daughter with PWS and very interested in Shaklee for her but not sure where to start?

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