Monday, February 14, 2011

Research, For Our Sweethearts

The Prader-Willi Syndrome Association (USA) is conducting its 9th annual Valentine's Day Research Campaign all of February.  On Valentine's Day as many break out the chocolates and serve special dinners, many families will struggle to keep their routine of healthy eating because their childrens lives depend on it. Our sweethearts with Prader-Willi Syndrome (PWS) can't enjoy holidays as many children do.  They can't have the candy or enjoy the treats that are a part of most holidays because of their inability to burn calories effectively. Yet they not only have a longing for a normal life and an interest in eating just as any other child, they also have a strong unnatural craving and hunger for all food. An insatiable appetite that cannot be appeased no matter how much they eat.

We will celebrate Valentine's Day today and my daughter Kirsten (7) will come home from school, excited to have received valentines from her friends.  We will go through her bounty looking for any candy that will quickly disappear and to Kirsten, who will get a little now and then, may seem to disappear quicker than she though it would.  These are the tricks you learn as a parent to a child with PWS. You then change her focus to something exciting like her upcoming daddy daughter dance. Keeping these children active and focused on anything other than food is a full time job.  Managing weight is a lot of work and to allow even one day of splurging, or even a little extra, is ground that is lost and is not easily recovered.

Won't you please consider supporting research for our children and future children. Consider giving up a lunch, a special coffee, a fast food meal, dinner out, that stash of chocolates, ect.  Every little bit helps. A poster on the donation page said it best, "Inch by inch, it's a cinch".

Here is the link for the Valentine's Day Research Campaign taking place this month.  Click Here
Here is another on going campaign to help fund research. At the very least, please check out this amazing page called "Light a Candle, Be a Light for PWS"   Click Here
The Prader-Willi Syndrome Association is a very strong organization when it comes to family involvement, but when it comes to financial support, they struggle just as any other organization.  Much can be learned from our children who struggle from Prader-Willi Syndrome (PWS), but it will take more costly research.

$5, $10, $25 or whatever you can afford. Every little bit adds to the growth of funds that can help fund this research for treatments and solutions... For our sweethearts who are still "Hungry for a cure".
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Please also continue to pray for EllyAnnah.  For details and to join in spirit, go to the Prayer Chain for EllyAnnah on Facebook, already over 2000 strong.

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